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Research Associate in ELSI in Rare Conditions

United Kingdom, Manchester 37694.00 - 41064.00 GBP / Year · Job Posted May 05, 2026

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Job Description

Research Associate in ELSI in Rare Conditions. The UK Rare Disease Research Platform was established in 2023 with £14 million investment from the NIHR and the MRC. The ELSI Node includes projects led by the University of Manchester, the University of Oxford and Cardiff University. The Manchester team is exploring impact and outcomes in rare conditions clinical trials, with a focus on ensuring that patient and family perspectives shape research and policy-relevant outcomes. This is an exciting opportunity for a skilled and motivated researcher to contribute to the University of Manchester’s work within the MRC/NIHR ELSI Node. The postholder will support research focused on rare conditions clinical trials, including qualitative and mixed-methods research, engagement with patients, family members, public contributors and professionals, support for study recruitment, research ethics applications, and analysis of research data. The role will also contribute to patient and public involvement and engagement activity and help ensure that lived experience informs the direction and impact of the research.

Job Responsibility

  • Support research focused on rare conditions clinical trials, including qualitative and mixed-methods research
  • engagement with patients, family members, public contributors and professionals
  • support for study recruitment
  • research ethics applications
  • analysis of research data
  • contribute to patient and public involvement and engagement activity
  • ensure that lived experience informs the direction and impact of the research

Requirements

  • Postgraduate qualification in a relevant discipline (e.g., Genetic/Genomic Counselling, Genomic Medicine, Nursing, Psychology, Medical Sociology or the Social Sciences)
  • experience of working with patients, public contributors, or vulnerable and marginalised groups
  • experience of qualitative research methods including interviewing and analysis
  • strong communication, organisational and collaborative working skills
  • a PhD/DPhil in a relevant area would be advantageous

Nice to have

PhD/DPhil in a relevant area

What we offer

  • Fantastic market leading Pension scheme
  • Excellent employee health and wellbeing services including an Employee Assistance Programme
  • Exceptional starting annual leave entitlement, plus bank holidays
  • Additional paid closure over the Christmas period
  • Local and national discounts at a range of major retailers

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