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National Engagement Lead - Ultra Rare Diseases

United Kingdom; Denmark, Uxbridge · Job Posted February 23, 2026
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Job Description

The role of the of National Engagement Lead – Ultra Rare Diseases is a critical role in Ultra Rare Diseases, bridging cutting-edge science with strategic account leadership. A field based role which builds partnerships with national and local External Experts (EEs) to improve patient outcomes and enhance the availability and utilisation of Norgine products through collaboration, education, and scientific exchange. The role acts as both a scientific resource and a strategic account leader delivering high-level medical education to healthcare professionals (HCPs), whilst driving customised access and advocacy solutions with key institutional accounts.

Job Responsibility

  • Lead ROC Insight to Action process to focus insight gathering activity
  • Act as a strategic business partner, accountable for communicating actionable insight
  • Cross-functional collaboration with global colleagues, the local ROC leadership team, and colleagues in other countries
  • Develop own capabilities by participating in assessment and development planning activities
  • In all activities comply with local legal, regulatory, and ethical requirements
  • Using meticulous planning to schedule distinctly separate promotional, commercial and non-promotional activities
  • Develop an in-depth understanding of the healthcare ecosystem, patient journey, and treatment pathways to formulate comprehensive account plans
  • Foster collaborative relationships with key stakeholders
  • Perform thorough market analyses
  • Design and implement detailed strategies aligned with overarching business goals
  • Lead the development and execution of services that facilitate the integration of Norgine’s products into local healthcare systems
  • Partner with HCPs to refine patient pathways and treatment protocols
  • Collaborate across functions to coordinate market strategies, key account management, and customer engagement
  • Execute sales and marketing strategies and integrated programs/tactics
  • Through peer-to-peer two-way scientific exchange, this role will focus on understanding the current treatment options and patient expectations
  • Provide accurate, non-promotional scientific information relating to unlicensed products and indications following unsolicited requests from HCPs
  • Provide accurate, non-promotional information to patient advocacy groups
  • Provide accurate, scientific information relating to licensed products and indications following solicited or unsolicited requests from HCPs
  • To provide information to HCPs regarding recent developments, clinical data, and treatment approaches in the therapy area
  • To collect insights on clinical practice, unmet needs, and patient outcomes
  • To enhance evidence-based medicine and facilitate collaboration in clinical research or real-world data projects
  • Answer medical/technical enquiries from HCPs
  • Identify and track potential research opportunities
  • Liaise between potential researchers and the company on ISTs (Investigator Sponsored Trials) submission
  • Provide specialist advice on the interpretation and application of policies and procedures

Requirements

  • Bachelor's Degree or Equivalent Level Life Sciences, Pharmacy, Medicine, or a related field
  • Experience working in Rare Diseases, especially with launching new products, with close knowledge of the workings of both Medical and Commercial field teams is preferred
  • Strong scientific communication and stakeholder engagement skills
  • Proficiency in CRM systems and data analysis tools
  • In-depth knowledge of industry regulations and compliance standards with the ability to navigate complex compliance frameworks
  • Experience strategic account management
  • Fluency in English and local language
  • willingness to travel

Nice to have

Master's degree or PhD is preferred

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