Director, Patient Advocacy

About Zevra Therapeutics, Inc. We are a rare disease therapeutics company leading with science to make life-changing therapeutics available to patients with significant unmet needs. We involve key thought leaders, physicians, patients, care partners, and advocacy groups in all of our clinical and regulatory development strategies. With a keen understanding that drug development often requires creative solutions, we have the insight and expertise to forge new pathways to success that others have missed. By following the data without bias, our transparent narratives and common-sense perspective have successfully overcome complex development challenges to make much-needed therapies available to patients. Nimble and dauntless, we push boundaries beyond what is thought to be possible and advance new therapies that have the potential to bring meaningful improvement to patients’ lives. About The Role The Director, Global Patient Advocacy, will work in close collaboration with relevant stakeholders including medical affairs, commercial, regulatory and clinical development to define the company’s patient advocacy priorities and oversee advocacy strategies and collaborations that educate and activate patients. Direct patient advocacy relationships and interactions across the portfolio disease states including NPC, UCD, and lead advocacy plan execution. Cultivate successful relationships with global patient advocacy organizations and create and execute education and awareness strategies. Serve as an internal subject matter expert on issues relating to patient advocacy. The position is based on-site in Boston, MA.